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EmilyXLC posted in the group Fibromyalgia
My mom reached out to me today to let me know that she suspects she may have Fibromyalgia. I admit, I don’t know much about Fibro, but I am joining this group to learn more. I am open to any information that anyone would like to share, and am already diving into the existing posts! Thanks a bunch. : )
5 Comments-
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https://www.fmtest.com/ FM/a® Test I do suspect your PCPs are still unaware there is a blood test. I’ll have to look to find the codes, it’s always better to have them, deceases the likelyhood of them ordering the incorrect one and/or not testing. What are her symptoms that led her to feel she may have Fibro?
.https://www.fmtest.com/healthcare-professionals/ -
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@eclecticzebra Oh my gosh, I’m screenshotting this and sending it to her. I think she needs to just join the community; let’s see what we can do!
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![Profile picture of eclecticzebra]()
I will help her as much as I can 😉 When they step you through medications, be careful with Wellbutrin and Cymbalta. Wellbutrin, I blacked out at the top of 25 steps holding my 6 month old-woke up 5 minutes later they said- she was fine luckily, I had such a grip on her she was on top of me the whole ride..gahhh I had been on it for 20 days at that point. Cymbalta, may work for some but was the devils work for me. I’m always happy go lucky and I was a mean, hateful, fogged, still pained and just evil, suicidal as hell-NOT myself in any way, shape or form. Weening off is painful and it’s just wicked stuff. Not for me. There is an entire group on the Book Of Face for people trying to ween off of it. All that and the pain had gotten worse. I always gave each medication a good 30 day try-I only made it to day 14 -I just could not suffer any more.
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![Profile picture of eclecticzebra]()
Did the Momz join? Has she had her appt. yet? Inquiring minds need to know 😉 ((giggle)) I was thinking back to when I was determined to do this naturally, SalonPas was a great product! With Fibro you’d really need a SalonPas infused blanket (business idea!) but for knees, back etc, it does help fairly well.
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Oh noooo 🙁 The only positive is that there is now a blood test for it, vs. the old school pressure point testing. Does she have the whole body nerve pain? I do hope she doesn’t have to step through all the nonsense that most have to go through before they get to what helps. It is all trial and error. I know a lot of people who have had great results with Savella. When it comes to chronic nerve pain, there isn’t anything topical that will help. It’s everywhere. Taking showers just flat out hurt like hell 🙁 Does she have an appt with a Rheumatologist? That would be the quickest no nonsense route for an accurate diagnosis.