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EmilyXLC posted in the group Fibromyalgia

My mom reached out to me today to let me know that she suspects she may have Fibromyalgia. I admit, I don’t know much about Fibro, but I am joining this group to learn more. I am open to any information that anyone would like to share, and am already diving into the existing posts! Thanks a bunch. : )

5 Comments

eclecticzebra
3 years ago

Oh noooo 🙁 The only positive is that there is now a blood test for it, vs. the old school pressure point testing. Does she have the whole body nerve pain? I do hope she doesn’t have to step through all the nonsense that most have to go through before they get to what helps. It is all trial and error. I know a lot of people who have had great…Read More
- eclecticzebra
  3 years ago
  
  https://www.fmtest.com/ FM/a® Test I do suspect your PCPs are still unaware there is a blood test. I’ll have to look to find the codes, it’s always better to have them, deceases the likelyhood of them ordering the incorrect one and/or not testing. What are her symptoms that led her to feel she may have Fibro?…Read More
- EmilyXLC
  3 years ago
  
  @eclecticzebra Oh my gosh, I’m screenshotting this and sending it to her. I think she needs to just join the community; let’s see what we can do!
  - eclecticzebra
    3 years ago
    
    I will help her as much as I can 😉 When they step you through medications, be careful with Wellbutrin and Cymbalta. Wellbutrin, I blacked out at the top of 25 steps holding my 6 month old-woke up 5 minutes later they said- she was fine luckily, I had such a grip on her she was on top of me the whole ride..gahhh I had been on it for 20 days at…Read More
  - eclecticzebra
    3 years ago
    
    Did the Momz join? Has she had her appt. yet? Inquiring minds need to know 😉 ((giggle)) I was thinking back to when I was determined to do this naturally, SalonPas was a great product! With Fibro you’d really need a SalonPas infused blanket (business idea!) but for knees, back etc, it does help fairly well.

William Slover posted in the group Fibromyalgia

https://painresource.com/fibromyalgia/digital-fibromyalgia-therapy-new-treatment-gets-fda-breakthrough/

mjj96824 posted in the group Fibromyalgia

My first post…
Has anyone tried organic chlorella to help with Fibromyalgia pain?

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2 Comments

William Slover
3 years ago

@mjj96824 I have heard a lot of great things about chlorella. I know of people who drink it for skin care.
- mjj96824
  3 years ago
  
  I’m sorry I haven’t responded I’m having a hard time menevouring this stuff on here

Lily Stacy posted in the group Fibromyalgia

Interesting read about substituting your opioids for CBD for fibromyalgia pain.

https://labblog.uofmhealth.org/body-work/people-fibromyalgia-substituting-cbd-for-opioids-to-manage-pain

People with fibromyalgia substituting CBD for opioids to manage pain

The cannabis-derived substance provides fewer side effects, with less potential for abuse.

labblog.uofmhealth.org

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1 Comment

eclecticzebra
3 years ago

Has this actually worked for anyone? I tried this in cahoots with my doctor, and the amount, frequency and cost I need were all sadly, too much for me. Hopefully we get to the point where insurance covers CBD -sure would be a game changer for so many. Mitchells Medicinals was local to me at the time and was fairly effective.. Full spectrum and…Read More