I’ve had (been diagnosed with it) since 2009, so I get this a LOT. It’s really frustrating, because people hear “fatigue” and associate it with “tired” when in reality they’re two very different things. Just like you can be “tired” and not want to sleep, you can still be tired and not fatigued.

ETA: because I thought hitting enter would take me…Read More

Yes it’s on my far too lengthy list of issues, usually goes hand in hand with Fibromyalgia- mess on paper..gah! It is wrong, those who are not true spoonies likely will never get it. Between the Fibro, EDS, CFS, AG, and a small child I keep the coffee industry booming LOL That, you don’t look sick and.. try yoga grrr I used to keep The Spoon…Read More

I was diagnosed with Pots disease 2 years ago and I have a feeling I also have CFS. But I don’t know how to go about being diagnosed.

That’s definitely something to keep in mind… It’s awful that this is even something that has to be considered when we take these kinds of medications. My father, who lived with chronic pain alongside his disabilities, always told me about how he never discussed his medications with people after catching theft in the act, time and time again.…Read More

I’m not sacrificing my comfort for fears. I have taken them for over 13 years at this moment. I was born and raised in an area, where YES, you may be a target in the parking lot etc. They do sit and watch, lurk behind you in line to hear what you are picking up etc. Pharmacies in those areas typically will have a guard go to your car with you…Read More

Oh nooooo @Suzzee33 bless your heart. These doctors shouldn’t be practicing. HUG HUG HUG.

Be the one who makes them change- file a formal complaint- Attny General etc. No way should any medical establishment have such a negative view from the general public. Sorry you are going through this 🙁