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KM1985 posted in the group Fibromyalgia
Hi all. I’m new to this group. Is anyone here from the Toronto (Canada) area? I’ve been looking for local support groups but Google has turned up nothing, sadly.
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Zachary Pottle posted in the group Invisible illness
Does anyone know anyone or have any experience with chronic fatigue syndrome? I feel like it just has such a negative connotation from everyone I’ve mentioned it to. People will be like, “I’m always tired too,” or “we all get tired,” which I think is so wrong. Curious to hear what you all think.
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![Profile picture of faeridream]()
@zachary-pottle @dori-smith Fellow ME sufferer here! The name CFS is such a damaging term. A great site, though no longer updated (unfortunately the woman who ran it passed away from ME quite a few years ago) – is HFME.org. Even though it was written a decade ago, there are so many helpful & educational articles and I could relate to so much of…Read More
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![Profile picture of eclecticzebra]()
Yes it’s on my far too lengthy list of issues, usually goes hand in hand with Fibromyalgia- mess on paper..gah! It is wrong, those who are not true spoonies likely will never get it. Between the Fibro, EDS, CFS, AG, and a small child I keep the coffee industry booming LOL That, you don’t look sick and.. try yoga grrr I used to keep The Spoon…Read More
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I was diagnosed with Pots disease 2 years ago and I have a feeling I also have CFS. But I don’t know how to go about being diagnosed.
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![Profile picture of eclecticzebra]()
@brynsmommy38 Do you by any chance have a hypermobility syndrome of sorts? POTS and CFS typically goes along with Marfans, EDS etc.. As far as I know there is no specific testing for CFS, just the totality of other testing, diagnostic criteria, sleep studies etc. I’d simply ask my doctor flat out if it’s a possibility because of.. XYZ…Read More
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William Slover posted in the group Chronic Pain
It’s not too late to find the perfect gift for a Chronic Pain sufferer…
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Suzzee33 posted in the group Natural Remedies
I am a croninic insomniac and have been on prescribed sleeping pills for many years. I am weening off of them and am nearing the end of the withdrawals . Boy that was fun.I don’t want to depend on opioid to run my life. Is there anyone who knows of any all natural products that can help me sleep? I have tried Melatonin and Magnesium and they…Read More
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![Profile picture of MEC77]()
All I do is smoke some really good Indica. I can’t take Melatonin as it does nothing for me. Maybe you can look into valerian root, lemon balm, or passion flower, as well.
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![Profile picture of Suzzee33]()
@mec77 yeah I smoke some good indica to but some nights it just don’t work
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![Profile picture of temeisha-quick]()
I’m not sure but maybe if you like milk you can drink it warm. i was once told
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EmilyXLC posted in the group Back & Spine
Has anyone here considered Radiofrequency Ablation for their back pain? This might be a helpful read for you if you are:
Radiofrequency Ablation for Back Pain: Here’s What You Need to Know
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William Slover posted in the group Chronic Pain
5 Ways to Avoid Holiday Burnout When Living With Chronic Illness
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Suzzee33 posted in the group Chronic Pain
Well turns out I don’t have my IC again. We have a hospital that sux here I was telling them I couldn’t pee that I had to bare down and go every 30 minutes so not much sleep for me
Went to the ER the Dr was rude and said they gave you antibiotics twice…I was like yeah but there not working. He told me to go home and take napoxsen . I was in…Read More6 Comments-
![Profile picture of EmilyXLC]()
Oh nooooo @Suzzee33 bless your heart. These doctors shouldn’t be practicing. HUG HUG HUG.
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![Profile picture of Suzzee33]()
@emilyxlc I am telling you. I hear stories all the time that people go to that hospital and get sent home and die..
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![Profile picture of eclecticzebra]()
Be the one who makes them change- file a formal complaint- Attny General etc. No way should any medical establishment have such a negative view from the general public. Sorry you are going through this 🙁
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![Profile picture of EmilyXLC]()
@eclecticzebra THIS. It’s hard to think straight after this kind of crap happens, but you are right.
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![Profile picture of Suzzee33]()
@emilyxlc yes it is. You get more depressed and feel hopeless
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![Profile picture of Suzzee33]()
@eclecticzebra I think I will. Thank you
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hardslide posted in the group Fibromyalgia
Recently diagnosed with fibromyalgia. In a great deal of pain right now and nothing seems to be working. What is most effective in alleviating your pain?
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![Profile picture of EmilyXLC]()
Hello @hardslide and welcome to the community. I am so sorry to hear that you are in a lot of pain– I hope these articles will be helpful: https://painresource.com/fibromyalgia/4-natural-remedies-for-fibromyalgia/ https://painresource.com/news-experts/ask-the-experts/ask-the-expert-drug-free-ways-to-fight-fibromyalgia/
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I’ve had (been diagnosed with it) since 2009, so I get this a LOT. It’s really frustrating, because people hear “fatigue” and associate it with “tired” when in reality they’re two very different things. Just like you can be “tired” and not want to sleep, you can still be tired and not fatigued.
ETA: because I thought hitting enter would take me…Read More