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tborges posted in the group Mental Health
How do you manage feelings of anxiety or depression on days when it feels particularly overwhelming?
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KM1985 posted in the group Fibromyalgia
Hi all. I’m new to this group. Is anyone here from the Toronto (Canada) area? I’ve been looking for local support groups but Google has turned up nothing, sadly.
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Zachary Pottle posted in the group Invisible illness
Does anyone know anyone or have any experience with chronic fatigue syndrome? I feel like it just has such a negative connotation from everyone I’ve mentioned it to. People will be like, “I’m always tired too,” or “we all get tired,” which I think is so wrong. Curious to hear what you all think.
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@zachary-pottle @dori-smith Fellow ME sufferer here! The name CFS is such a damaging term. A great site, though no longer updated (unfortunately the woman who ran it passed away from ME quite a few years ago) – is HFME.org. Even though it was written a decade ago, there are so many helpful & educational articles and I could relate to so much of…Read More
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Yes it’s on my far too lengthy list of issues, usually goes hand in hand with Fibromyalgia- mess on paper..gah! It is wrong, those who are not true spoonies likely will never get it. Between the Fibro, EDS, CFS, AG, and a small child I keep the coffee industry booming LOL That, you don’t look sick and.. try yoga grrr I used to keep The Spoon…Read More
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I was diagnosed with Pots disease 2 years ago and I have a feeling I also have CFS. But I don’t know how to go about being diagnosed.
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@brynsmommy38 Do you by any chance have a hypermobility syndrome of sorts? POTS and CFS typically goes along with Marfans, EDS etc.. As far as I know there is no specific testing for CFS, just the totality of other testing, diagnostic criteria, sleep studies etc. I’d simply ask my doctor flat out if it’s a possibility because of.. XYZ…Read More
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William Slover posted in the group Chronic Pain
It’s not too late to find the perfect gift for a Chronic Pain sufferer…
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EmilyXLC posted in the group Back & Spine
Has anyone here considered Radiofrequency Ablation for their back pain? This might be a helpful read for you if you are:
Radiofrequency Ablation for Back Pain: Here’s What You Need to Know
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William Slover posted in the group Sex & Relationships
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brynsmommy38 posted in the group Pain Management
Does anyone get euphoric migraines? What do you do that is medication free to get them to stop?
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After ALL of these years, I had thought I was alone! I didn’t even know there was a true name for them until now– I just always called it post-migraine high. It makes me want to eat a TON of food and I just feel SO good after the migraine finally breaks. I try to drink plenty of water as one of my big migraine triggers is dehydration and that…Read More
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William Slover posted in the group Chronic Pain
5 Ways to Avoid Holiday Burnout When Living With Chronic Illness
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I’ve had (been diagnosed with it) since 2009, so I get this a LOT. It’s really frustrating, because people hear “fatigue” and associate it with “tired” when in reality they’re two very different things. Just like you can be “tired” and not want to sleep, you can still be tired and not fatigued.
ETA: because I thought hitting enter would take me…Read More