I’ve had (been diagnosed with it) since 2009, so I get this a LOT. It’s really frustrating, because people hear “fatigue” and associate it with “tired” when in reality they’re two very different things. Just like you can be “tired” and not want to sleep, you can still be tired and not fatigued.

ETA: because I thought hitting enter would take me…Read More

Yes it’s on my far too lengthy list of issues, usually goes hand in hand with Fibromyalgia- mess on paper..gah! It is wrong, those who are not true spoonies likely will never get it. Between the Fibro, EDS, CFS, AG, and a small child I keep the coffee industry booming LOL That, you don’t look sick and.. try yoga grrr I used to keep The Spoon…Read More

I was diagnosed with Pots disease 2 years ago and I have a feeling I also have CFS. But I don’t know how to go about being diagnosed.

After ALL of these years, I had thought I was alone! I didn’t even know there was a true name for them until now– I just always called it post-migraine high. It makes me want to eat a TON of food and I just feel SO good after the migraine finally breaks. I try to drink plenty of water as one of my big migraine triggers is dehydration and that…Read More

Placebos shouldn’t be allowed. A true chronic pain sufferer would be able to tell one in no time, I know I could, but I’ve played this game solidly for the past 13 years now. If doctors hand out placebo medications, then they should not be allowed to bill insurance or the patient for it. Wanna pass out water and Tic Tacs, make them on the house.

like to comment how good this article is considering i been going through as far as Physical Therapy which is true does help quite a bit !