-
![Profile picture of KM1985]()
KM1985 posted in the group Fibromyalgia
Hi all. I’m new to this group. Is anyone here from the Toronto (Canada) area? I’ve been looking for local support groups but Google has turned up nothing, sadly.
-
![Profile picture of Zachary Pottle]()
Zachary Pottle posted in the group Invisible illness
Does anyone know anyone or have any experience with chronic fatigue syndrome? I feel like it just has such a negative connotation from everyone I’ve mentioned it to. People will be like, “I’m always tired too,” or “we all get tired,” which I think is so wrong. Curious to hear what you all think.
5 Comments-
-
![Profile picture of faeridream]()
@zachary-pottle @dori-smith Fellow ME sufferer here! The name CFS is such a damaging term. A great site, though no longer updated (unfortunately the woman who ran it passed away from ME quite a few years ago) – is HFME.org. Even though it was written a decade ago, there are so many helpful & educational articles and I could relate to so much of…Read More
-
-
![Profile picture of eclecticzebra]()
Yes it’s on my far too lengthy list of issues, usually goes hand in hand with Fibromyalgia- mess on paper..gah! It is wrong, those who are not true spoonies likely will never get it. Between the Fibro, EDS, CFS, AG, and a small child I keep the coffee industry booming LOL That, you don’t look sick and.. try yoga grrr I used to keep The Spoon…Read More
-
![Profile picture of brynsmommy38]()
I was diagnosed with Pots disease 2 years ago and I have a feeling I also have CFS. But I don’t know how to go about being diagnosed.
-
![Profile picture of eclecticzebra]()
@brynsmommy38 Do you by any chance have a hypermobility syndrome of sorts? POTS and CFS typically goes along with Marfans, EDS etc.. As far as I know there is no specific testing for CFS, just the totality of other testing, diagnostic criteria, sleep studies etc. I’d simply ask my doctor flat out if it’s a possibility because of.. XYZ…Read More
-
-
-
![Profile picture of hardslide]()
hardslide posted in the group Fibromyalgia
Recently diagnosed with fibromyalgia. In a great deal of pain right now and nothing seems to be working. What is most effective in alleviating your pain?
1 Comment-
![Profile picture of EmilyXLC]()
Hello @hardslide and welcome to the community. I am so sorry to hear that you are in a lot of pain– I hope these articles will be helpful: https://painresource.com/fibromyalgia/4-natural-remedies-for-fibromyalgia/ https://painresource.com/news-experts/ask-the-experts/ask-the-expert-drug-free-ways-to-fight-fibromyalgia/
-
-
![Profile picture of MEC77]()
MEC77 posted in the group Fibromyalgia
I was diagnosed with Fibromyalgia back in 2010. I have tried all kinds of prescription medications and have never found anything to really work for me. I also feel like it is different with everyone: what might work for me may not work for 20 others. That being said: I use cannabis and I exercise. Yoga has helped me a lot, as well. I am prescribed…Read More
1 Comment-
![Profile picture of EmilyXLC]()
@mec77 thank you for sharing with us– it is amazing how much moving our bodies and focusing on our mindsets can help some things.
-
-
![Profile picture of mstweety68]()
mstweety68 posted in the group Fibromyalgia
Hi! I suffer from fibromyalgia, chronic migraines and a few other conditions. I seem to have lost my way in life..as in, I have no drive to do anything.
3 Comments-
![Profile picture of William Slover]()
Welcome @Mstweety68
-
![Profile picture of EmilyXLC]()
@mstweety68 Big hugs to you my friend– it can be tough when you just feel stuck. If you ever need an ear, feel free to message me. I’m always happy to listen.
-
![Profile picture of mstweety68]()
@emilyxlc Thank you
-
-
-
![Profile picture of sheshe77]()
sheshe77 posted in the group Fibromyalgia
I suffered bad flare ups off and on for 3 weeks. Was like they were never going to stop.
3 Comments-
![Profile picture of EmilyXLC]()
Oh @sheshe77 thank you for updating us on how you’re doing– hopefully it’s subsided for you. Did anything in particular seem to help at all?
-
![Profile picture of eclecticzebra]()
Ugh, I hope they have stopped and you feel better! Do you think it’s diet, weather, sleeping position? For me, the common cause is good old yummy MSG causing flares gahh
-
![Profile picture of Rida]()
I hope you doing well.
-
-
![Profile picture of Rebecca-Vanderburg]()
Rebecca-Vanderburg posted in the group Fibromyalgia
I have multi arthrists more one kind everywhere.even in spine and also have fibermalaga to.it everywhere.God Bless.
2 Comments-
![Profile picture of bruddo]()
Google Sulforaphane, arthritis, fibromyalgia, NIH for link’s to published clinical studies. Then look at The Sulforaphane Group FB page for links to All Natural Certified Organic Living Whole Plant options. share with your medical team of çourse.
-
-
![Profile picture of William Slover]()
William Slover posted in the group Fibromyalgia
Types of Fibromyalgia Pain: Symptoms, Treatment, and Support
https://painresource.com/fibromyalgia/types-of-fibromyalgia-pain/
- Load More Posts
I’ve had (been diagnosed with it) since 2009, so I get this a LOT. It’s really frustrating, because people hear “fatigue” and associate it with “tired” when in reality they’re two very different things. Just like you can be “tired” and not want to sleep, you can still be tired and not fatigued.
ETA: because I thought hitting enter would take me…Read More