I’ve had (been diagnosed with it) since 2009, so I get this a LOT. It’s really frustrating, because people hear “fatigue” and associate it with “tired” when in reality they’re two very different things. Just like you can be “tired” and not want to sleep, you can still be tired and not fatigued.

ETA: because I thought hitting enter would take me…Read More

Yes it’s on my far too lengthy list of issues, usually goes hand in hand with Fibromyalgia- mess on paper..gah! It is wrong, those who are not true spoonies likely will never get it. Between the Fibro, EDS, CFS, AG, and a small child I keep the coffee industry booming LOL That, you don’t look sick and.. try yoga grrr I used to keep The Spoon…Read More

I was diagnosed with Pots disease 2 years ago and I have a feeling I also have CFS. But I don’t know how to go about being diagnosed.

All I do is smoke some really good Indica. I can’t take Melatonin as it does nothing for me. Maybe you can look into valerian root, lemon balm, or passion flower, as well.

I’m not sure but maybe if you like milk you can drink it warm. i was once told

After ALL of these years, I had thought I was alone! I didn’t even know there was a true name for them until now– I just always called it post-migraine high. It makes me want to eat a TON of food and I just feel SO good after the migraine finally breaks. I try to drink plenty of water as one of my big migraine triggers is dehydration and that…Read More

Oh nooooo @Suzzee33 bless your heart. These doctors shouldn’t be practicing. HUG HUG HUG.

Be the one who makes them change- file a formal complaint- Attny General etc. No way should any medical establishment have such a negative view from the general public. Sorry you are going through this 🙁