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![Profile picture of Zachary Pottle]()
Zachary Pottle posted in the group Invisible illness
Does anyone know anyone or have any experience with chronic fatigue syndrome? I feel like it just has such a negative connotation from everyone I’ve mentioned it to. People will be like, “I’m always tired too,” or “we all get tired,” which I think is so wrong. Curious to hear what you all think.
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![Profile picture of faeridream]()
@zachary-pottle @dori-smith Fellow ME sufferer here! The name CFS is such a damaging term. A great site, though no longer updated (unfortunately the woman who ran it passed away from ME quite a few years ago) – is HFME.org. Even though it was written a decade ago, there are so many helpful & educational articles and I could relate to so much of…Read More
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![Profile picture of eclecticzebra]()
Yes it’s on my far too lengthy list of issues, usually goes hand in hand with Fibromyalgia- mess on paper..gah! It is wrong, those who are not true spoonies likely will never get it. Between the Fibro, EDS, CFS, AG, and a small child I keep the coffee industry booming LOL That, you don’t look sick and.. try yoga grrr I used to keep The Spoon…Read More
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![Profile picture of brynsmommy38]()
I was diagnosed with Pots disease 2 years ago and I have a feeling I also have CFS. But I don’t know how to go about being diagnosed.
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![Profile picture of eclecticzebra]()
@brynsmommy38 Do you by any chance have a hypermobility syndrome of sorts? POTS and CFS typically goes along with Marfans, EDS etc.. As far as I know there is no specific testing for CFS, just the totality of other testing, diagnostic criteria, sleep studies etc. I’d simply ask my doctor flat out if it’s a possibility because of.. XYZ…Read More
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![Profile picture of brynsmommy38]()
brynsmommy38 posted in the group Pain Management
Does anyone get euphoric migraines? What do you do that is medication free to get them to stop?
1 Comment-
![Profile picture of EmilyXLC]()
After ALL of these years, I had thought I was alone! I didn’t even know there was a true name for them until now– I just always called it post-migraine high. It makes me want to eat a TON of food and I just feel SO good after the migraine finally breaks. I try to drink plenty of water as one of my big migraine triggers is dehydration and that…Read More
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![Profile picture of William Slover]()
William Slover posted in the group Pain Management
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![Profile picture of William Slover]()
William Slover posted in the group Pain Management
1 Comment-
![Profile picture of eclecticzebra]()
Placebos shouldn’t be allowed. A true chronic pain sufferer would be able to tell one in no time, I know I could, but I’ve played this game solidly for the past 13 years now. If doctors hand out placebo medications, then they should not be allowed to bill insurance or the patient for it. Wanna pass out water and Tic Tacs, make them on the house.
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![Profile picture of EmilyXLC]()
EmilyXLC posted in the group Pain Management
Have any of you tried cognitive behavioral therapy to treat their chronic pain before? If so, what was your experience and would you recommend it?
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![Profile picture of William Slover]()
William Slover posted in the group Pain Management
3 Tips for Living with Someone with Chronic Pain
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![Profile picture of temeisha-quick]()
temeisha-quick posted in the group Pain Management
KneesPhysical Therapy or Surgery for a Torn Meniscus? A Look Into New…
KneesNews & ExpertsNewsStudies
Physical Therapy or Surgery for a Torn Meniscus? A Look Into New Evidence
A recent study has found that the benefits of physical therapy outweigh those of surgery for a torn meniscus. Read more here.
Friday, July 8, 2022Physical Therapy or…Read More
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liked this
1 Comment-
![Profile picture of temeisha-quick]()
like to comment how good this article is considering i been going through as far as Physical Therapy which is true does help quite a bit !
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![Profile picture of aweber]()
aweber posted in the group Pain Management
On the migraine front, since it was a big issue in last months poll of sources of pain, does anybody that takes Nurtec use their app? Apparently it allows customizable feature based on your migraine triggers? Just wondering if anybody has tried and if it is useful. Here is the post from their social media…Read More
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liked this
3 Comments-
![Profile picture of William Slover]()
I didn’t even realize we could embed Tweets
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![Profile picture of aweber]()
@slover-william how ’bout that!
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![Profile picture of EmilyXLC]()
This is SO interesting! I wonder if this is something I could use to help with my migraines…
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I’ve had (been diagnosed with it) since 2009, so I get this a LOT. It’s really frustrating, because people hear “fatigue” and associate it with “tired” when in reality they’re two very different things. Just like you can be “tired” and not want to sleep, you can still be tired and not fatigued.
ETA: because I thought hitting enter would take me…Read More