zentraf

tborges posted in the group Mental Health

2 months, 3 weeks ago

How do you manage feelings of anxiety or depression on days when it feels particularly overwhelming?
Zachary Pottle posted in the group Invisible illness

2 years, 8 months ago · updated 1 year, 10 months ago

Does anyone know anyone or have any experience with chronic fatigue syndrome? I feel like it just has such a negative connotation from everyone I’ve mentioned it to. People will be like, “I’m always tired too,” or “we all get tired,” which I think is so wrong. Curious to hear what you all think.

5 Comments
- dori-smith
  2 years, 8 months ago
  
  I’ve had (been diagnosed with it) since 2009, so I get this a LOT. It’s really frustrating, because people hear “fatigue” and associate it with “tired” when in reality they’re two very different things. Just like you can be “tired” and not want to sleep, you can still be tired and not fatigued.
  
  ETA: because I thought hitting enter would take me…Read More
  - faeridream
    1 year, 12 months ago
    
    @zachary-pottle @dori-smith Fellow ME sufferer here! The name CFS is such a damaging term. A great site, though no longer updated (unfortunately the woman who ran it passed away from ME quite a few years ago) – is HFME.org. Even though it was written a decade ago, there are so many helpful & educational articles and I could relate to so much of…Read More
- eclecticzebra
  2 years, 8 months ago
  
  Yes it’s on my far too lengthy list of issues, usually goes hand in hand with Fibromyalgia- mess on paper..gah! It is wrong, those who are not true spoonies likely will never get it. Between the Fibro, EDS, CFS, AG, and a small child I keep the coffee industry booming LOL That, you don’t look sick and.. try yoga grrr I used to keep The Spoon…Read More
- brynsmommy38
  1 year, 12 months ago
  
  I was diagnosed with Pots disease 2 years ago and I have a feeling I also have CFS. But I don’t know how to go about being diagnosed.
  - eclecticzebra
    1 year, 10 months ago
    
    @brynsmommy38 Do you by any chance have a hypermobility syndrome of sorts? POTS and CFS typically goes along with Marfans, EDS etc.. As far as I know there is no specific testing for CFS, just the totality of other testing, diagnostic criteria, sleep studies etc. I’d simply ask my doctor flat out if it’s a possibility because of.. XYZ…Read More
William Slover posted in the group Chronic Pain

1 year, 11 months ago

It’s not too late to find the perfect gift for a Chronic Pain sufferer…

Holiday Gift Ideas for Those With Chronic Pain

verwhelmed by holiday shopping? Check out Pain Resource's 12 holiday gift ideas for those with chronic pain.

https://painresource.com/chronic-pain/holiday-gift-ideas-for-those-with-chronic-pain/

liked this
brynsmommy38 posted in the group Pain Management

1 year, 12 months ago · updated 1 year, 12 months ago

Does anyone get euphoric migraines? What do you do that is medication free to get them to stop?

1 Comment
- EmilyXLC
  1 year, 12 months ago
  
  After ALL of these years, I had thought I was alone! I didn’t even know there was a true name for them until now– I just always called it post-migraine high. It makes me want to eat a TON of food and I just feel SO good after the migraine finally breaks. I try to drink plenty of water as one of my big migraine triggers is dehydration and that…Read More
William Slover posted in the group Chronic Pain

2 years ago

5 Ways to Avoid Holiday Burnout When Living With Chronic Illness

5 Ways to Avoid Holiday Burnout When Living With Chronic Illness

Does the holiday season tend to leave you feeling overwhelmed and emotionally drained? There's a word for that, and it's called holiday burnout.

https://painresource.com/chronic-pain/5-ways-to-avoid-holiday-burnout-when-living-with-chronic-illness/
Suzzee33 posted in the group Chronic Pain

2 years ago · updated 2 years ago

Well turns out I don’t have my IC again. We have a hospital that sux here I was telling them I couldn’t pee that I had to bare down and go every 30 minutes so not much sleep for me
Went to the ER the Dr was rude and said they gave you antibiotics twice…I was like yeah but there not working. He told me to go home and take napoxsen . I was in…Read More

6 Comments
- EmilyXLC
  2 years ago
  
  Oh nooooo @Suzzee33 bless your heart. These doctors shouldn’t be practicing. HUG HUG HUG.
  - Suzzee33
    2 years ago
    
    @emilyxlc I am telling you. I hear stories all the time that people go to that hospital and get sent home and die..
- eclecticzebra
  2 years ago
  
  Be the one who makes them change- file a formal complaint- Attny General etc. No way should any medical establishment have such a negative view from the general public. Sorry you are going through this 🙁
  - EmilyXLC
    2 years ago
    
    @eclecticzebra THIS. It’s hard to think straight after this kind of crap happens, but you are right.
    - Suzzee33
      2 years ago
      
      @emilyxlc yes it is. You get more depressed and feel hopeless
  - Suzzee33
    2 years ago
    
    @eclecticzebra I think I will. Thank you
glockdeadgorgeous posted in the group Chronic Pain

2 years, 1 month ago · updated 2 years ago

Is anyone else dealing with Toxic Positivity from their support system?

What is Toxic Positivity?

Article shared with me on Toxic Positivity

https://www.greatlakespsychologygroup.com/trending-topics/what-is-toxic-positivity/?utm_source=cc&utm_medium=email&utm_campaign=the-current_email_toxic-positivity_9-13-22

liked this

7 Comments
- Suzzee33
  2 years ago
  
  Never heard about this before
- Suzzee33
  2 years ago
  
  I will pray for you to get help and healing from this .
  - glockdeadgorgeous
    2 years ago
    
    @suzzee33 Thanks Suzzee! I know that my family being positive is them trying their best to support me!
- EmilyXLC
  2 years ago
  
  It’s tough, @glockdeadgorgeous because everyone just deals with everything differently. I know the ‘fake it til you make it’ mindset works for some folks, but that just is not applicable to everyone. ESPECIALLY when it comes to chronic pain and illness. Hugs to you.
  - glockdeadgorgeous
    2 years ago
    
    @emilyxlc My problem right now, is that I am ready to come to terms with the fact and accept the fact that after my car accident and two surgeries, I now have a chronic pain condition and I just want help from them in creating a new life plan for myself and adujusting my goals to meet my new circumstances. They still want me to undergo…Read More
    - Suzzee33
      2 years ago
      
      @glockdeadgorge I read that article and never knew about this….so sad to have to go threw so happy your family understands..
    - EmilyXLC
      2 years ago
      
      @glockdeadgorgeous That is heartbreaking to hear– I am so sorry. People tend to like to cling to their previous perceptions of people for their comfort and convenience, even when it ends up hurting someone. I think this is why it is so important for those of us who experience chronic pain/illness to have our tribe of those who *truly*…Read More
William Slover posted in the group Mental Health

2 years, 1 month ago

Preventing Suicide: Tips to Understand Complicated Tragedies

Preventing Suicide: Tips to Understand Complicated Tragedies

If You Know Someone in Crisis Call the toll-free National Suicide Prevention Lifeline (NSPL)at 1-800-273-TALK (8255)

https://painresource.com/lifestyle/preventative/preventing-suicide-tips-to-understand-complicated-tragedies/
Load More Posts

zentrafOffline

Posts

Comments

Views

Media

Friends

Groups

Badges

Profile Completeness